Dear Reader,
While I am writing this I am listening to my dear angel cry his eyes and heart out. I have done everything that I can to comfort him: changed him, snuggled him, changed his movie (several times) fixed his pillows, fixed his blankets, talked with him and still he cries. What do you do for a child who can't tell you what they need? It breaks my heart. Plus his favourite person (his dad) is out of town. He may know what to do. Is it bad that I am now spent trying to figure it out, and am just going to let him cry it out? Matt would probably say that we have done everything that we can, let's let him figure it out. But it is not that easy is it?

It is not all bad news tonight however! A prolific doctor in the Angelman community, Edwin Weeber, Ph.D. has begun to recruit participants in a clinical trial at the University of South Florida. It is called The Minocycline in the Treatment of Angelman Syndrome Clinical Trial. It is a trial of a drug that may be a treatment for Angelman Syndrome. Please go here for more information www.CureAngelman.org.
I would love for those of you that read about the trial to give me your thoughts.
Thank you.